Barry Mone

Charlie’s Hope

About the Member

13 Year Old Charlie has 2 Rare Conditions
DMD – Duchenne Muscular Dystrophy, a Muscle wasting condition – 1 in 4500 Boys
PHPV – Persistent Hyper-plastic Primary Vitreous 1 in 20,000 People
Combined with Exon 3 Duplication – Totally Unique – Charlie is 1 in 7.81 Billion people in the World

Raising Awareness

0427 785 339


Areas of Expertise

Raising Awareness, Networking, Marketing, PR

Blog Contributions by this Member

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