Barry Mone
Charlie’s Hope
About the Member
13 Year Old Charlie has 2 Rare Conditions
DMD – Duchenne Muscular Dystrophy, a Muscle wasting condition – 1 in 4500 Boys
PHPV – Persistent Hyper-plastic Primary Vitreous 1 in 20,000 People
Combined with Exon 3 Duplication – Totally Unique – Charlie is 1 in 7.81 Billion people in the World
Areas of Expertise
Raising Awareness, Networking, Marketing, PR
Blog Contributions by this Member
No Results Found
The page you requested could not be found. Try refining your search, or use the navigation above to locate the post.